Tag Archives: Regina Holliday

HIMSS and HERS – On The Cusp Of Something Big

HIMSS 2014 just wrapped up in Orlando. My 4th HIMSS in 6 years, I found the usual: crowded, vendor centric, sterile massive location. Food was costly and not healthy. My feet hurt. Typical, right?

But there were also diamonds, too – real signs of great things emerging. Namely, more women, more patient & consumer focus, and maturing capabilities where new models of care will blossom. Here’s some thoughts..


1. Women are in the Health IT House!
We’re hearing from, and following more women in #Health IT – and it’ll keep going. Artist, Patient Advocate & worldwide speaker Regina Holliday set up her easel at the Connected Patients and Families Center and said, “Why HIMSS? What about HERS?” Reggie always reminds us of who we are and where we need to go. Her painting is comical while it cuts to the chase!

Former Secretary and Senator Hillary Clinton gave a rousing plenary to a packed crowd, talking about her healthcare journey and boosting attendees’ confidence that the health IT field will help improve health care while making it easier for patients and families to have a better experience. I’m optimistic but worry about HIT adding costs, something she didn’t mention. I suspect most of us were surprised when she gave us insightful fireside comments on geopolitical events. She ended by reminding us that women have come along way, but work is far from done. She recently launched No Ceilings, a project to support full participation of women and girls in the 21st century.
HIMSS clinton
Many other women champions and thought leaders were at HIMSS14, too many to list. A few in the public sector include the VA’s Theresa Cullen, ONC’s Judy Murphy and Lygeia Ricciardi, and of course new National Coordinator Karen DeSalvo. In the private sector, women leaders such as Humetrix CEO Bettina Experton are fierce and visionary but way too scarce.

More to Go: We need more women leading HIT companies, on Boards and advisory teams. Men: Hilary Clinton said that everyone plays a role and that everyone benefits!

2. Patients and Caregivers pounded the HIMSS Runway.
The Connected Patients and Families Learning Gallery was incredible. In the vendor area was significant square footage, carpet, lounge chairs, a big screen and continuous presentations. Consumer Voice is still modest compared to Big Software, Big Hardware and Big Data…but it is getting watered! With HIMSS also announcing the Connected Patient Committee – participatory design is set to grow. HIMSS Senior Director Mary Grizkowitz has been a passionate leader driving Patient Voice and participatory medicine at HIMSS. Other champions include Kate Berry, Leslie Kelly-Hall, Kate Christensen, Laura Adams and so many others. 
HIMSS Connected Patient view

More to Go: Connected Patients & Families gets a central location inside the Vendor area, co-located with patient-facing tools. 

3. Data exchange is finally trickling down to the consumer. I spend time learning what people want from health care and thinking about solutions to meet these needs. Consumers, patients and families don’t necessarily say ‘I need a list of my meds and allergies’ but do say, ‘help me take care of myself, and don’t make it hard for me to get information.’ A big part of that is health record access – shared records. ePatient Dave DeBronkart gave a talk Let My Data Go! in the Interoperability tent == a very high visibility area at HIMSS. He adeptly advocated for Blue Button and OpenNotes. Way to go, Dave!

More to Go:
all I can say is, Move Over Moses – Let our data go (and be entered!)

There was so much information and chats at HIMSS (and HERS!) that it’ll take time to digest, review and follow-up. At least my feet are OK now, and I just had a salad for dinner. ๐Ÿ™‚

Regina Holiday’s slides can be found here.

Danny van Leeuwen and MaryAnne Sterling’s slides focused on Caregiver Contributions can be found here.

Northern California transforms HIMSS with a patient centered conference. Engage!

Jan Oldenburg, Regina Holliday and Kate Christensen

Jan Oldenburg, Regina Holliday and Kate Christensen

My dear friends and colleagues Jan Oldenburg and Kate Christensen invited me to a Northern California HIMSS conference, Transforming Healthcare Through Digital Patient Engagement. It was one of the best patient/consumer oriented days I’ve had in a long time. A huge thanks go out to all the organizers, speakers and attendees. Let’s figure out how to clone it, grow it, scale it, disseminate it!

Jan, the President of the N. California HIMSS Chapter, started the day in Fairfield, California, saying

Patient engagement is about creating the world we want to live in.

Jan also rightly promoted her new book, Engage! Co-authored by Kate, Dave Chase and Brad Tritle, promotes consumer-facing health IT as a means to empower, engage and strive for patient contribution.

Regina Holliday set the stage for the day, and riveted the audience with her personal story and powerful messages — about the we-can’t-stop demanding transparency and quality health care that meets our needs. (Standing ovation – what’s new?) painted two fabulous works of art, The Heart of the Matter, and Sky. My favorite Reggie quote of the day was

You must treat every patient as the wonderful, unique person that they are


The power of social media was discussed by Ileana Balcu, Social Media & Communications Lead for the Society of Participatory Medicine, and Brad Tritle, Director of Business Development at Vitaphone USA. All eyes and ears were on Liz Salmi, a young adult cancer survivor and blogger on TheLizArmy.com who shared her journey of finding other cancer survivors who just weren’t like her == leading her to do more tailored networking to make her patient experience have more value.

The power and vulnerability of the caregiver was told by Nancy Burghart-Hall, CIO at MedAmerica, who shared her experience of dealing with very non-patient-centered emergency services.

I had the pleasure of co-presenting with Kate Christensen, who just retired from Kaiser as Director of Internet Services. She’s been a champion for patient digital services before most of us knew what a portal was. Now millions of Kaiser enrollees use kp.org to meet their needs, thanks to Kate’s vision, leadership and steady hand. Ted Eytan did a lovely post about Kate and her recent transition.

I got to boast about the VA’s recent expansion of personal health record data sharing — the opening of all clinical notes with patients using the PHR, My HealtheVet. We recently published a qualitative study on patient experiences of reading their notes, and Engage! pretty much sums it up. After OpenNotes, where do we go? Patient Generated Data…and participatory design.

The last group to talk was just as exciting as the first, and included Neng Bing Doh, CEO of the texting platform start-up, Healthcrowd. Neng gave us a glimpse of a potentially powerful engagement tool: using SMS feedback to segment the consumers and optimize usage. We also heard from Elise Singer from Share the Visit; Sonia Samagh from Ellipsis Health; Ron Leutmer of Healthcare Anytime; Kerri Hickey from Mobile Heartbeat; and Jeff Pollard from 23andMe.

The day was short but oh so sweet. Thank you, Jan, for allowing me to connect, participate and spread the KoolAid. ๐Ÿ™‚

Maine puts bright light on partnering with patients for health at Quality Counts!

Lucky me – I went to Maine to join a panel at the annual Quality Counts! conference, QC 2012: Partnering with Patients: Finding the Bright Spots to Transform Care.

The plenary speaker line-up was outstanding, and attendance was robust. Congratulations to Quality Counts director Lisa Letourneau, Dee Kerry DeHaas, Kellie Slate Miller and everyone who helped hit it out of the park.

What a great day. I was able to see @Regina Holliday in all her visual and auditory glory, show off my Walking Gallery jacket (the story comes from Maine), and catch up with many, many dear friends and colleagues (tears were shed upon leaving).

The opening video was ALL patient voices – talking about issues, working in partnership with clinical team members. Watch these truly excellent stories. Link to the video here.

Jessie Gruman, president of the Center for Advancing Health and Prepared Patient blogger, opened minds by talking about What does it mean to engage? What does it take? and presenting the Engagement Behavior Framework. Jessie noted how a hotel room tends to have more helpful information than a clinic visit or hospital stay. She challenged us to think about the ‘naugahyde folder by the hotel bed’ and how its information is organized to meet consumer needs.

Regina Holliday painted Maine Trees and gave a riveting plenary. She reminded us that we formed our beliefs about medicine through TV. Then she told the story of Fred, her quest for better care, shared records and transparency. Each time I hear her I learn more, feel more, and have more urgency for things to happen. Golden Globes need to go to patient advocates (what would they be called?). She finished saying Maine is a beacon of light, needing to shine and bring darkness into day. She blogged about the day and the painting here. Thanks, Regina.

More national speakers came, including authors and thought leaders Jerome Groopman and Pamela Hartzband. They shared stories too, pointing out how patient values and ‘mind sets’ are so key to shared decision making. All speakers were given copies of their new book Your Medical Mind: How to Decide What Is Right for You and I look forward to reading it.

I was honored to be part of a panel, Personal Health Record: Using HIT to Strengthen Patient Partnerships, with Shaun Alfreds of Maine’s HIE HealthInfoNet, Dr. Steve Bein of Wilson Stream Family Medicine, and patient Paul McGuire. We all talked about the power of patient participation and how patient-facing health technologies improve the care experience – and quality. My slides can be seen, along with theirs and other speakers, on the Quality Counts site.