Patient Data Generación!
There’s been some great postings and stories about patient-generated data. Empowered and engaged people who dig into their health data and try to use it to their advantage. And share it with their doctors to help THEM! (and I’m not talking about blood pressure and blood sugar monitoring)
In A Graphic Use Of Drugs: How One Patient Visualized His Health Data, Forbes wrote about Ken Spriggs, a Chicago commodities trader who has dealt with a variety of inflammatory conditions. He mapped out, over years, the number of drugs he has been on. A particular quote from the Forbes post is particularly emblematic of the struggles people/patients have in making sense of their health and their healthcare:
It took four arduous months for Spriggs to collect his data in the form of 600 loose papers, many handwritten, from doctors and hospitals in Chicago, Fort Collins, Co., and Charleston, S.C.; he just finished.
Most of you probably haven’t seen another patient-generated data posting on the MPN Forum, a social media site on myeloproliferative neoplasms. A recent entry, The Empowered Patient, is a phenomenal post by my dear friend and colleague, Michael Goldstein. Michael knows more about empowering and empowered patients than anyone. He’s a physician, great teacher and researcher (on patient-provider communication), and now leader and visionary at the Veterans Health Administration’s National Center for Health Promotion and Disease Prevention.
After you read this excerpt from Michael’s post, you’ll want to read the whole thing:
My oncologist marveled at my quite rudimentary spreadsheet, created from an online Personal Health Record (PHR) program. He asked me if he could make a copy of the graphs to scan into my chart, remarking, “I wish all my patients brought in graphs like these!” The good news is that we all can! And, there is evidence that if we monitor and track our own medical data, we can improve the quality and safety of our care.
I realize these are two real smart guys who know data inside and out. Thinking most people wouldn’t be able to do this? Maybe. With the right tools, and the right support, they probably can.
Patient Data Generation – a consumer health revolution!